After telling someone that I can’t smell, sometimes I’m asked how I happened to lose my sense of smell. Usually, the people who ask this question know someone, like a grandmother or aunt, who have lost their sense of smell. But as far as I can remember, I’ve never been able to smell. So losing it (like…oops…where did it go?!) isn’t really a question that applies to me.
Losing part or all of one’s ability to smell is quite different from being born without the sense entirely (congenital anosmia). And there are varying levels and names that go along with one’s ability to smell. For example, if a person only experiences a partial loss of smell or a diminished loss of smell, the condition is called hyposmia. If the person is older and slowly losing the ability to smell (which is very common by the way), then the condition is referred to as presbyosmia. There are many other distinguishing factors that I won’t go into here, but the causes of each vary.
For hyposmia, the cause can be anything from a sinus infection to nasal polyps, a side effect of medication, head trauma, or in some cases tumors.
For congenitals, however, the causes are a bit sketchy. In rare cases the cause can be an inherited disorder called Kallmann syndrome (which I don’t have). Some doctors theorize that the olfactory nerves were never properly developed, or damaged somehow, or simply do not “communicate” properly with the brain. Most of the time though the cause cannot be determined, which is the case with me. Oh, and they have a name for that too…idiopathic anosmia.
So, in conclusion, I do not know why I have never been able to smell a thing. All I know is that it is NOT A TUMOR! I did the CAT scan thing many years ago.
- Jun 13, 12:05 PM
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1 · Kyle Fisk · Mar 9, 02:29 PM
i lost my sense of smell from an accident were i recieved head trauma. that was six years ago, and every time i tell someone i can’t smell they always ask me if i can taste. yes, i can taste, but a lot of people won’t believe me becouse they think that if you loose your smell you also loose your taste. now i know the two senses are connected, but they don’t rely on one another in order to function. i guess i just wanted to add that to your article.
2 · Heather · Mar 9, 02:43 PM
Thanks for sharing Kyle! Nice to meet you!
3 · Kyle Dornan · Apr 3, 09:56 PM
I recently fell while skateboarding and i had bad head trauma, and it has been three about 3 weeks since i have fallen, do you think it will ever come back? I know three weeks isnt long but im just curious
4 · sherry · Apr 4, 10:16 PM
My mother said when I was five years old I hit my head on something now I’m 45 years of age that’s when I lost my smell at the age of five nice to meet you both these other ways of getting around. Touch feel see hear, those are the four senses I use taste on an everyday basis, like four incidents I can see fire I can see mold I can see smoke I can touch things that are yucky, I can see garbage, and mold when it’s available,
5 · Heather · Apr 5, 08:49 PM
Kyle D…sorry about the accident!!! Unfortunately, though, whether or not you’ll be able to smell again is a question your doctor would have to answer. All I know is that some people do regain their sense of smell after an accident, and some don’t. Sorry I can’t be much help there.
6 · nathaniel · Jun 20, 08:12 PM
I got to be honest i didn’t know there were others out there that didn’t have a sense of smell. i have to ask does anyone else get tired of explaining “No i can’t tell if the damn milk spoiled” k um bye
7 · krystal · Jan 6, 09:39 PM
for as long as i can remember i havent had a sense of smell. and it really does bother me because i feel like there is a whole nother world out there that im missing lol. i hate constantly having to ask my husband to smell this or that. i want to be able to smell it myself. so therefore, i have made an appt with an ENT doctor to get it checked out. i feel like i shouldve made this appt a long time ago. i just hope there is something they can do about it
8 · sherry · Feb 15, 12:27 AM
hi I’m back. On April 4 I left a message forget the year. Now it’s the year 2010 I’m looking for a cure. I was kind of wondering if rebuilding stem cell would bring back smell.
9 · Heather · Feb 15, 11:55 AM
Welcome back Sherry! As far as I know, there is no cure for anosmia. If you find something out though let us know!
10 · Don Stokes · Mar 16, 07:30 PM
Hi,
I’m (allegedly) a Kallman’s “sufferer”, although the symptoms are far from conclusive. There are (at least) two types of Kallman’s. Type 1 is pretty easy to spot. Type 2 varies enormously in how it’s expressed, and for me, apart profound anosmia, the symptoms are mere hints rather than definite markers.
I’ve done the MRI thing — apparently the channels for the olfactory nerves are present, but the nerves themselves are not, which is a bit strange.
BTW: Does anyone know what’s happened to www.anosmia.net? I haven’t been able to get onto it for several months now (just get a blank page). Is it likely to come back? Ever?
— don
11 · Heather · Mar 17, 10:16 AM
Hey Don!
I’ve never had an MRI. They did a CAT scan on me when I was in junior high (that was a little while ago [cough cough]) but that was basically to rule out brain tumors…if I remember correctly.
I find your missing nerves fascinating! Anyone ever made any bad jokes…like “You haven’t got the nerve!”???
Sorry…couldn’t resist.
And about anosmia.net…not sure what happened. Anybody know?
12 · Sarah · Apr 24, 02:01 PM
Hi Everyone,
Thanks for all the helpful information. I had an accident where I had brain surgery in 1997. I lost my sense of smell when the nerves were cut. Was wondering with all the new technology these days if they could reconnect them. Its really annoying not having a sense of smell and explaining to people or perfume sprayers that you can’t smell.
13 · Dennis Smith · Apr 25, 12:35 AM
i was born with anosmia, but i never had to much trouble with it, i actually found out that i had it when i was young and our door was sprayed by a skunk, and i couldnt tell! i find that with any type of gas in the air, i can taste it in the back of my throat, even before others can smell it, which is useful, but that might be different for people who lose there smelling, not who are born without it. i dont really care much about not smelling except when the family drives near a kfc(u guys know the drill), but i love the irony of when i tell someone that their fart stinks. lol
14 · Denis Moore · Jul 20, 02:39 AM
Yo guys you got to help me out im freaking out, i moved to korea i live on mountin side and my nose would soemtimes be blocked for a whole day, lately it didt happen now it happened again and before i was leaving house i spayed some colone, as i was walking to my doorway i realised i dont smell anything!! so i went back i sprayed my colone like 10 times n pawn ofmy hand, i smell it and nuthing, except the dingly feeling and somewhat taste of alcohol, now i went smelled everything around my house i dont smell ANYTHING!! How seriosu is this?? i heard once that if u loose ur smell it hard to get an apetite for a food, guys u got to help me what do i do? im only freaking 19 years old!!
15 · hassan · Aug 24, 03:12 AM
Hi every one not me only lost his smell sense!
I have been lost this sense ten years ago , I was in flu then i get some camphor and put it inside the nose then little by little i lost smell smell sense is there any treatment ? please help
16 · hassan · Aug 24, 03:17 AM
I put Camphor oil inside my nose then my smell sense became weak and more weak then lost